Blog My Way Now

2011-08-14T01:24:00.001+01:00

The stone that Steven swallowed!

No winder it was causing him discomfort! Perhaps he will learn but then again..... Well we can always hope do!

The Drs said it was the largest stone they had seen a child swallow!

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2011-08-08T18:15:00.001+01:00

2011-07-22T00:58:00.001+01:00

2011-07-14T19:10:00.001+01:00

2011-06-26T20:45:00.001+01:00

2011-06-25T17:31:00.001+01:00

2011-06-19T13:11:00.001+01:00

2011-06-04T16:27:00.001+01:00

2011-05-31T19:40:00.001+01:00

2011-05-30T21:41:00.001+01:00

2011-05-28T19:21:00.001+01:00

2011-05-21T19:07:00.001+01:00

2011-05-13T21:44:00.001+01:00

2011-05-11T22:08:00.000+01:00

2011-05-05T17:01:00.001+01:00

I will be voting NO to AV tomorrow. http://www.no2av.org/

2011-05-04T20:57:00.001+01:00

2011-05-02T18:07:00.001+01:00

2011-05-01T17:38:00.001+01:00

2011-04-29T18:47:00.001+01:00

2011-04-29T14:15:00.001+01:00

2011-04-29T11:03:00.001+01:00

It's raining! 1st time for a while we have seen the wet stuff here on Bedford!

Why does the Bentley being used by the princes not have a tax disc or registration plate?

2011-04-26T16:03:00.001+01:00

Is a little sunburned today!

2011-04-26T11:39:00.001+01:00

2011-04-24T18:48:00.001+01:00

2011-04-22T21:30:00.001+01:00

Just sat in the car on the drive waiting for Steven to get out of his chair. He is refusing to budge and I am not going to shift him.

As many of you will know I am not an Apple fan but having played with the iPhone 4 I am impressed! Its a lovely bit of kit. Might be tempted

2011-04-22T11:53:00.001+01:00

2011-04-16T22:50:00.001+01:00

2011-04-15T10:59:00.001+01:00

Was up at half past midnight with Steven fitting but managed to sleep right through hours 2nd fit at about 6 am. Still feel a bit rough.

Just spent ages cleaning my glasses, the more I cleaned them the more greasy they seemed to get! Was using a tissue soaked with Balsam! Doh

2011-04-14T21:16:00.001+01:00

2011-04-12T10:38:00.001+01:00

Feeling pretty shattered this morning. Steven had a fit over night and needed medication, he is now sleeping soundly, like I wish I was.

At the office just waiting to be picked up by Joy, to go to the Hospital. Steven been taken in by ambulance, from school due to another seizure! These are happening all too often!

2011-03-15T15:18:00.001Z

As usual. Dr seems more concerned that Steven might have an infection than with the actual seizure he is presenting with. Even though he is still fitting, albeit only very slightly!

Looks like he has stopped fitting now. So we just have to refuse tests & get him discharged. Easier said than done!

Home now. Steven taken himself off to bed.

2011-03-13T00:48:00.001Z

2011-03-12T21:40:00.001Z

2011-03-07T21:33:00.001Z

Have you ever seen a green glacie cherry before? For the record it tasted just like a red one and yes I did eat the cake myself. In the interests of research of course!

Its cold, damp & miserable outside today! A day for lazing at home in front of the open fire. Just 1 problem, we don't have an open fire!

2011-02-20T15:33:00.001Z

Has a stinking cold & feeling a bit sorry for himself! No its not flu, of any variety! Both kids have colds too.

2011-02-05T20:18:00.001Z

Right... Bedtime for me. London tomorrow but being driven there & (I hope!) back.

2011-02-01T01:31:00.001Z

2011-01-28T11:28:00.001Z

AND..... Relax.. Now child free until Sunday evening. Off for a weekend in the cotswolds with Joy this afternoon.

2011-01-11T22:00:00.001Z

Just waiting for our baby sitters to arrive then we are out for a meal with the leaders at church. looking forward to the evening

2011-01-11T11:37:00.001Z

Has a bad back this morning to go along with the bad shoulder I have had for a few days now! Ouch! :(

2010-12-30T16:39:00.001Z

Had a visit from someone assessing whether steven can manage his own affairs this morning she didn't take long to realise
That he wasn't going to handle his affairs himself but whilst the lady was filling in the forms Natalie asked if Steven had an affair! Just one of those priceless moments with children!

Natalie enjoying one of her christmas presents

2010-12-25T15:03:00.001Z

The Nativity Interview

2010-12-23T00:38:00.001Z

2010-12-20T13:22:00.001Z

Off work today, full of cold but just been to collect Steven fro, Foxgloves & the thermometer in the car says current temperature is -9 which probably explains the 'chilled to the bone' feeling.

2010-12-09T20:02:00.001Z

2010-12-08T19:56:00.001Z

Only an hour and a half till the council executive meting. Getting nervous about my speech/presentation. But looking forward to getting closure on this chapter

As anticipated... Foxgloves proposal has been voted through. Foxgloves future is now secured :) <3 thanks everyone for the support over the past few long weeks.

Arrived at church this morning, Steven nearly asleep so wheeled him in wheelchair, now going in & out of seizure!

2010-11-28T13:23:00.001Z

2010-11-27T16:10:00.001Z

Steven out with carers so we have taken Nat out for a bit of a treat. Lunch at a pub on the way to do what girls do best, shopping! In Hitchen.

2010-11-27T13:05:00.001Z

Feel like I have done a few rounds in a wrestling match. Getting Nat ready 4 school was a real struggle 2day! She is not so happy this year

2010-11-25T11:48:00.001Z

Had a fantastic, restful, child free weekend. Picked Nat up, she seems to have enjoyed her weekend too! Now in Pizza Hut giving Nat a treat

2010-11-21T20:14:00.001Z

Had a good nights sleep & the kids are off to school, time to relax before heading off to work.. Be a chilly bike ride this morning though!

2010-11-17T11:40:00.001Z

Well.... Both kids in bed now... Peaceful night required!

2010-11-16T23:53:00.001Z

2 Minute Silence

2010-11-11T14:21:00.001Z

2 Minute Silence

Just had a really, I mean REALly, positive meeting at the council this morning regarding Foxgloves... Watch this space....

2010-11-05T15:32:00.001Z

Has had a good nights sleep.. Although I think my snooring kept Joy awake! Still full of cold but a lot better than last night..

2010-11-02T10:58:00.001Z

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2010-10-28T00:03:00.001+01:00

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2010-10-27T14:04:00.001+01:00

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A good night but S had bad diarhoea, all over clothes & bedding etc, just got that, & him, cleared up & he threw up.. Yuck!

2010-10-17T11:15:00.001+01:00

Struggling to understand how 1 organisation (Bedford Borough Council) can be so institutionally incompetent!

2010-10-15T16:33:00.001+01:00

Being let down with sitters by the Agency Again! This time on my b/day! Useless people! & bedford borough want us 2 use this kind of service more often instead of more reliable services! I think NOT!

2010-10-14T17:52:00.001+01:00

Just got Nat off to school.. At last, was a huge battle all morning! Peace & quiet now though :) Work this morning but I want to sleep!

2010-09-24T11:31:00.001+01:00

On the back of a sachet or hot chocolate

2010-09-23T01:06:00.001+01:00

The bottom line reads 'caution contains a source of milk' does that mean they have put a cow in my hot chocolate?

Sibling cuddlez

2010-09-17T21:55:00.001+01:00

Is absolutelly shatttered this morning

2010-09-16T11:27:00.001+01:00

Steven playing ball

2010-09-13T23:03:00.001+01:00

Steven throwing a ball into a basket, interacting & playing with Natalie

Wedding Day, Graham & Helen

2010-09-11T14:56:00.001+01:00

Had a very interesting morning, took some1 to S /Woodford & saw this fantastic community facility & then on to meet Graham & Steph. Just round corner. Finding out just how small the world really is!

2010-09-10T15:54:00.001+01:00

almost forgot, had a call from Nats respite carers, asking if we wanted her to do an overnight tomorrow night. a real answer to prayer.

OH dear!! What did I say! Wheelchair services had a special harness made up to keep Steven from sliding out of his chair but it won't work!

2010-09-07T14:27:00.001+01:00

Getting tired of life, particularly of being a parent to 2 demanding & difficult children. Just running out of energy & strength.....

2010-09-05T14:12:00.001+01:00

Got Natalie off to school... Steven sleeping following a seizure & sedation @ 6.15 this morning.

2010-09-03T11:44:00.001+01:00

That was an unexpectedly civilised breakfast! Steven sleeping off a fit & Nat just woken after sleeping in all was quiet & calm here.

2010-09-02T11:29:00.001+01:00

43 Hours & 20 minutes to go......

2010-09-01T16:40:00.001+01:00

Well, try as I might, this is not going to be one of those productive days! Far from it in fact! Now wheres the kettle? More coffee.....

2010-08-31T14:52:00.001+01:00

Dear photoshop, please play nicely with me I only want you to help me sort a few photos out! Thank you muchly

2010-08-30T23:19:00.001+01:00

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2010-08-27T20:16:00.001+01:00

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Been a much better day than forecast! Lovely sunny day, spent good time on beach then crabbing. Caught 7 crabs. But Nat been crabby last Hr

Well.... Not even got away yet & Steven has had a series of nasty fits in respite & is now in hospital. After not having a fit for 10 days!

2010-08-26T11:27:00.001+01:00

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2010-08-22T21:21:00.001+01:00

Grrrrr Mothers!!!!

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2010-08-22T16:25:00.001+01:00

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Back & unpacked, good journey home, we also had a good time on the beach, apart from me getting stung by a wasp that is! :(

2010-08-21T20:03:00.001+01:00

Well almost packed up, bit cloudy & windy this morning but not bad enough to stop us heading for the seafront for a while this morning.

2010-08-21T12:09:00.001+01:00

Had another great day on the beach, so much for overcast & grey! I just realised how much sun I caught. Got sunburn :(

2010-08-20T20:29:00.001+01:00

My Heart of Stone

2010-08-19T22:05:00.001+01:00

Evidence, if it was needed, that I do indeed have a heart of stone

My Heart of Stone

2010-08-19T16:45:00.001+01:00

Evidence, if it was needed, that I do indeed have a heart of stone

Been a great day, set up camp on the beach & didn't move all day. Fab weather. Good times

2010-08-18T19:16:00.001+01:00

Having a lovely day on the beach quite windy but still T-Shirt weather.

2010-08-15T18:15:00.001+01:00

Ok had a good afternoon down by the seafront, weather was kind to us, certainly better than forecast. Now settled into the holiday bungalow.

2010-08-14T20:20:00.001+01:00

Having a drink along the sea front & Joy has just been stung by a wasp :(.

Well..... When the food evetually arrived it was nice but the staff here are sooooo miserable. @littlechef

2010-08-14T16:41:00.001+01:00

Well, #littlechef Saxmundum you have the most miserable least helpful staff ever! At least we are now in Southwold.

Well, we are off on our holidays, weather: damp but not raining

2010-08-14T13:25:00.001+01:00

We have stopped 4 lunch @little chef A12 Southwold, waitress miserable as anything facilities discusting service lousey! In all 0/10

Still waiting for food @littlechef a number of people have left service is that bad! We would if it wasn't for Natalie, she wouldn't cope.

Just heard from the carers out with Steven, he has had another fit, half way round Harold & Odel C/park. Always had a great sense of timing.

2010-08-11T16:46:00.001+01:00

Tired this morning, after being woken just after 6am with Steven fitting, still strugle with my sleep being abruply interrupted like that.

2010-08-11T11:03:00.001+01:00

That was a successful trip. Now on the bus headed homeward bound.

Buying ticket home, I said to Nat tell the bus driver where you want to go so she turns to the driver & says 'home please'

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2010-08-08T19:23:00.001+01:00

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2010-08-07T20:59:00.001+01:00

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Steven

This is how Steven has spent most of the day! Hope he sleep alright tonight!

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2010-08-05T23:03:00.001+01:00

Natalie wanted me to take a photo of this blister on her foot!

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Natalie wanted me to take a photo of this blister on her foot!

Just reslised it is 'only' 5 weeks today that the kids go back to school...

2010-07-30T11:48:00.001+01:00

Feeling pants this morning, hayfever, tiredness, low... Want to go back to bed...

2010-07-29T13:09:00.001+01:00

Done the shop ready for tomorrows BBQ now just gotta hope & pray for a sunny afternoon with NO rain!

2010-07-23T22:05:00.001+01:00

Just grabbing a coffee whilst the tent dries & hoping to hopes that the big black cloud hanging around here is NOT going to dump rain on us

2010-07-23T13:15:00.001+01:00

Steven has been taken into hospital, from respite, but we are too far to get back to Bedford tonight!

2010-07-22T22:21:00.001+01:00

Just heard, Steven is now out of hospital & back in respite home, no problems.....

Well that was a long drive round to find somewhere for lunch! Via a place that didn't exist & another where they had a height barrier we couldn't get under! Now settled on a pub in Broxbourne.

2010-07-22T16:26:00.001+01:00